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Crowdfunding campaign seeks S$286,000 to provide yearlong treatment for 67-year-old woman battling rare bone disorder

A 67-year-old woman in Singapore could be the only adult grappling with the rare FGF23-related hypophosphatemia, causing phosphorus loss and severe pain.

Lee Wan Shan’s years of agony lead her to seek relief through Burosumab Treatment, necessitating expensive monthly injections.

Her family turns to Ray of Hope’s crowdfunding platform, aiming to gather S$286,000 for a full year of treatment for Mdm Lee.

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SINGAPORE: A 67-year-old woman is grappling with an uncommon medical condition known as FGF23-related hypophosphatemia, which has induced a form of Osteomalacia caused by a hormone-driven tumor.

This condition leads to an ongoing loss of phosphorus. Consequently, Lee Wan Shan, a resident of Singapore, has not only lost all of her teeth but also endures excruciating bone pain, confining her to her bed for more than a decade.

She may very well be the sole adult in Singapore afflicted by this rare ailment. To enhance her quality of life, she is currently under palliative care and relies on prescribed morphine and painkillers to manage the severe discomfort in her bones and nerves.

Recently, a potential solution has emerged that kindles hope for Mdm Lee’s recovery – the Burosumab Treatment. However, in order to embark on this treatment journey, involving monthly injections that could cost $23,800.

In light of this, Mdm Lee’s family is earnestly seeking public assistance through the online crowdfunding platform Ray of Hope. Their goal is to raise a total of S$286,000, enabling Mdm Lee to undergo a full year of treatment.

As per available information online, Burosumab, marketed under the brand name Crysvita, is a human monoclonal antibody medication that gained approval in 2018 for addressing X-linked hypophosphatemia and tumor-induced osteomalacia. Burosumab is used to normalize phosphate levels in adults and children who are at least 1 year old and have X-linked hypophosphatemia.

Successfully removed the tumor in 2008, but it spread to her liver

Mdm Lee, a resident of Jurong West, was diagnosed with a tumor in 2006. Following a surgical procedure to remove the tumor in 2008, her health exhibited a brief improvement.

However, within a few months, a distressing turn of events occurred as the tumor metastasized to her liver. Remarkably, the tumor began secreting fibroblast growth factor 23 (FGF-23), leading to the continuous excretion of phosphorus from her kidneys and triggering the development of osteomalacia.

In an interview with the local Chinese media outlet “Shin Min Daily News,” Mdm Lee described the intense bone pain during episodes, which rendered her unable to turn over while sleeping. Her daily sustenance relied solely on liquid nourishment, and the management of her excretion necessitated the use of diapers.

“In my family, there was no history of this kind of illness. Before falling ill, I used to run, climb mountains, and exercise downstairs, so I never thought I would get this disease.”

Her reliance on prescribed morphine and painkillers to mitigate bone and nerve pain has inadvertently compromised her immune system, precipitating symptoms such as hallucinations, stomach discomfort, loss of appetite, and dizziness.

Approximately a year ago, following consultation with an endocrinologist, the family was advised that the Burosumab Treatment was the sole viable option due to the infeasibility of tumor removal through surgery. This lifelong treatment incurs a substantial monthly cost estimated at $23,800.

Significantly, this treatment employs a non-standard medication, thereby precluding eligibility for mainstream funding or subsidies.

By embracing this course of treatment, Mdm Lee can potentially alleviate her reliance on daily morphine doses for pain management, thereby enhancing her overall quality of life.

Despite exhausting multiple avenues in pursuit of financial aid, the family’s efforts have proven insufficient in alleviating the burdensome financial implications. Despite accessing the hospital’s endowment fund, which offered a one-time assistance of up to $30,000, the treatment’s expense remains prohibitively high.

“We’ve exhausted all other means and will have to rely on your kindness and generosity to help give my mother a chance to live a little better, ” said the family in the statement on Ray of Hope.

The funds, totaling S$286,000, are dedicated to covering one year of treatment for Mdm Lee, with the full payment requirement upfront.

Mdm Lee’s daughter, Wong Xue Li, disclosed to Shin Min Daily that they had previously applied for subsidies related to the medication, but encountered an absence of follow-up.

“We also emailed the manufacturer of the medication, but didn’t receive a response.”

She also mentioned that doctors told them that if the medication leads to improvement, perhaps the dosage and cost could be reduced.

During the early stages of the disease, pinpointing its origins proved elusive, leading the family on an exhaustive quest for medical intervention, ultimately depleting their savings substantially.

Recalling that period, Mdm Lee recounted consulting various doctors in their pursuit of answers, yet no definitive cause emerged.

“This period lasted about 3 years, and we consulted multiple doctors, but unfortunately, the condition didn’t improve. Instead, it led to us using up the around S$40,000 we had saved up.”

She mentioned that she is a homemaker, and her husband used to do odd jobs. He retired many years ago, and now they rely on their son’s monthly income and government welfare subsidies to sustain their lives.

Daughter’s sacrifice for ailing mother

The devotion of her 32-year-old daughter to caregiving prevented her from entering the workforce for years, resulting in a burden of guilt.

Mdm Lee pointed out that her 75-year-old husband is gradually weakening as well and can’t take care of her for extended periods. Therefore, her daughter has been taking care of her since graduating from secondary school.

“My daughter is already 32 years old, but because she hasn’t entered the workforce, she hasn’t worked or found a boyfriend.”

Mdm Lee disclosed that her daughter has diligently cared for her for an extended duration, while she also nurtures the aspiration that her daughter will one day embark on building her own family.

“This is also the reason why I continue to hold on. I hold onto hope that one day I’ll get better.”

As of Friday (4 Aug), the online crowdfunding campaign initiated in May has garnered a heartening total of S$32,479.

Nevertheless, in order to achieve their target, the remaining 89% must be raised to ensure that Mdm Lee receives the essential treatment.

Kind-hearted individuals and members of the public are cordially invited to contribute to Mdm Lee’s cause through the Ray of Hope platform.

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Malaysian man who recently reunited with family after 20 years dies in Kaki Bukit fire

On 19 September, a fire erupted in an industrial building at 25 Kaki Bukit Road 4, leading to the deaths of two men. During the firefighting operation, the Singapore Civil Defence Force (SCDF) discovered the two carpentry foremen unconscious and rushed them to Changi General Hospital, where they were later pronounced dead. One of the victims, Luo Jiaqiang, had reconciled with his family just six months prior after a 20-year estrangement.

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SINGAPORE: On Thursday (19 September), a fire broke out in an industrial building at 25 Kaki Bukit Road 4, resulting in the deaths of two men.

The Singapore Civil Defence Force (SCDF) responded to the incident at approximately 12:55pm, finding thick smoke enveloping the fifth floor.

During the operation, two unconscious individuals were located in a unit opposite the one ablaze and were immediately rushed to Changi General Hospital, where they were later pronounced dead.

The victims were identified as 51-year-old Malaysian Luo Jiaqiang (罗家强) and 65-year-old Singaporean Vincent, as reported by Lianhe Zaobao.

Both were carpentry foremen who had scheduled a lunch meeting with He Shuxiang, the 63-year-old owner of a furniture company, at 12:30pm.

However, due to last-minute work issues, Mr He was delayed, and the two men went to rest in separate rooms on the mezzanine floor.

When the fire erupted, two employees working on a lower floor attempted to warn the men before evacuating.

Despite shouting to alert them, Mr Luo and Mr Vincent could not hear and were unable to escape.

The employees tried to rescue the pair but were thwarted by the thick smoke.

They managed to reach the men by phone, with Vincent reportedly saying, “It’s choking; I can’t breathe,” before the call cut off.

Mr Luo’s call also ended abruptly after about a minute, with only the sound of laboured breathing.

After failing to make further contact, the employees informed the firefighters and evacuated the building.

Mr He expressed deep regret over the tragedy, wondering if it could have been prevented had he arrived on time for the meeting.

The two men had been discussing a potential collaboration on a furniture project when the fire broke out.

Luo moved to Singapore two decades ago after a family dispute

On Friday, Mr Luo’s younger brother, Luo Jialong, visited the mortuary to claim his body.

In an interview with 8world News, he recounted how he had been notified of his brother’s death between 3pm and 4pm the previous day by one of Mr Luo’s colleagues.

Mr Luo had moved to Singapore 20 years earlier following a family dispute but had reconciled with his relatives just six months ago.

Since then, he had returned to Malaysia every weekend to spend time with his family, with his final visit occurring on Sunday (15 September).

His funeral will be held in Malaysia on 22 September.

The Singapore police confirmed that both men were found unconscious and later succumbed to their injuries.

Preliminary investigations have ruled out foul play, though inquiries are ongoing.

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Elderly men eating leftovers at People’s Park Food Centre spark concerns over rising living costs

A recent report revealed that elderly men have been seen eating leftovers at People’s Park Food Centre, raising concerns about their potential struggles amid rising living costs in Singapore. Online community are urging relevant agencies to reach out and understand their situations.

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Singapore: A group of elderly men has reportedly been eating leftovers at in People’s Park Food Centre, as reported by Shin Min Daily News on Wednesday (18 September).

According to tips from readers, these elderly men have been spotted scavenging for food at the bustling food centre in Chinatown.

Witnesses noted that they not only take unfinished meals from tables but also search the dish return area for additional leftovers.

Several hawkers reported seeing multiple elderly individuals, including one specific man, frequently visiting the food centre to collect leftovers, although they were unaware of their identities and living situations.

A Chinese food hawker, who has worked there for over ten years, noted that at least three or four scavengers come daily, usually around 8 or 9 PM, and sometimes kind customers buy food for them.

Another stall assistant, Ms Ma, observed that diners often leave their tables, allowing the older man to sit down and eat the leftovers directly.

Cleaner Mr Quan mentioned that while he has seen the man taking food left by others, he has also witnessed him buying his own meals, suggesting he is not in dire financial need.

Additionally, Quan noted that these scavengers typically arrive around 10 AM and leave in the afternoon.

One Elderly Man Interviewed Attributes Leftover Eating Habit to Waste Prevention, Not Financial Struggles

Among the scavengers is Mr Wang, an 84-year-old resident of Bedok, who emphasised that he doesn’t want to waste food.

He told reporter, “I have a home and children, but it’s very lively here, so I come every day and go home in the evening.”

He acknowledged his habit of eating leftovers, stating, “It’s not because I lack money; I simply don’t want to waste food.”

He explained, “Some people order a lot and can’t finish it; sometimes a whole fish is left uneaten. ”

“When I see large plates of leftover food, I think it’s a waste, so I take it to eat, and it’s still warm,” he said, adding that other scavengers respect each other’s space and enjoy their own finds.

Not everyone supports the practice of scavenging for leftovers. Daniel Tay, a retired financial advisor and advocate for freeganism, expressed concerns about the potential dangers of consuming discarded food.

He pointed out that it’s often unclear how long the food has been left out or if it has been contaminated by animals or pests, which could lead to food poisoning.

“It’s extremely unhygienic. Diners might throw away food or toss used napkins into it, contaminating it further. If a diner gets sick, such as with the flu or COVID-19, they could pass the virus to someone eating the leftovers,” he warned.

Tay suggested a more proactive approach, encouraging people to ask diners if they can take home any uneaten food, which would help ensure the food is clean and raise awareness about food waste.

Netizens Urge Agencies to Address Challenges Faced by Elderly Amid Rising Living Costs

Comments on Shin Min’s Facebook page reveal that many netizens suspect the elderly men scavenging for food may be facing significant challenges and are urging relevant agencies to reach out to understand their situations.

Some are questioning whether the rising cost of living in Singapore is prompting individuals to resort to drastic measures to save money.

One netizen commented, “Every family has its own difficulties; who hasn’t faced storms and hardships? If you see an elderly person, please invite him to a meal. After all, we will all grow old one day. Whether it’s a blessing or a curse, only heaven and earth know. I believe that Singaporeans who see him will definitely invite him to a meal.”

Discussion on Singapore’s Hardwarezone forum also highlighted that many have witnessed similar situations, indicating that this issue is not new.

One netizen speculated that some elderly individuals might be facing mental health challenges. The user shared observation of an elderly woman in Little India who regularly collects cardboard and sells 4D lottery tickets. Despite receiving money from passersby, she continues her activities.

Another user recounted an experience of seeing an elderly woman eating directly from leftover plates and offered to buy her a plate of duck rice.

However, the hawker advised that it would be pointless, as the woman allegedly prefers eating leftovers to fresh food. The netizen expressed pity for her situation, noting that other customers had also tried to buy her a meal.

Not the First Time Elderly Individuals Spotted Scavenging for Leftovers at People’s Park Food Centre

This is not the first time elderly individuals have been spotted eating leftover food at People’s Park Food Centre.

In November 2022, 8World News reported that at least seven elderly people allegedly engage in such practice regularly at the hawker centre. These individuals typically search for unfinished food left on tables or at the tray return area.

At that time, in response to inquiries from 8World News, the Ministry of Social and Family Development (MSF) stated that they were collaborating with grassroots volunteers and hawkers to identify these elderly individuals and provide assistance if needed.

MSF encourages the public to report any elderly individuals in need of help by calling 1800-222-0000 or connecting them with local social service agencies through the OneService App.

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